Gliklich RE, Dreyer NA, eds.
Prepared by Outcome DEcIDE Center
The purpose of this handbook co-funded by AHRQ and HHS' Centers for Medicare & Medicaid Services (CMS) is to serve as a reference for establishing, maintaining, and evaluating the success of registries created to collect data about patient outcomes. This book is divided into three sections: Creating, Operating, and Evaluating Registries.
"A patient registry is a database of confidential patient information that can be analyzed to understand and compare the outcomes and safety of health care.
The data may originate from multiple sources, including hospitals, pharmacy systems, physician practices, and insurance companies. Some registries include patients who have the same disease. Others are comprised of patients who have undergone a common surgical procedure or received a newly approved medication. " Press release
Registry Report home page
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